Sunday, December 6, 2015

My Journey with Hyperemesis Gravidarum

          As I approach my graduation and reflect upon the past 7 months, I can honestly say that these past months have been some of the most challenging of my life, and yet they have also strengthened my testimony immensely. I have been so grateful and so amazed at the mercy and miracles that I have seen. Most of you probably know that I’m pregnant and many of you may know that I am one of those unfortunate people who experiences Hyperemesis Gravidarum. For those of you who are less familiar with what this is, Hyperemesis Gravidarum is excessive and severe nausea and vomiting associated with pregnancy. Those who have it typically lose at least 5-10% of their body weight and frequently have to be hospitalized for dehydration. In some cases, sufferers may have to get a feeding tube for nutrition or a Zofran pump placed for continuous medication to try to control symptoms. It does not just go away after the first trimester (as typical morning sickness usually does); it can last for the whole pregnancy. HG also makes a woman 4 times more likely to give birth prematurely.

            I am one of the lucky ones. I have what could be considered a mild to moderate case of HG. I managed to finish my clinical rotations and never had to be hospitalized. I was able to maintain many aspects of my normal life. Many do not have this blessing and my heart genuinely aches for them and the sacrifices they make to bring their children into this world. You never know going into it if it’s going to happen to you. And everyone’s experience with HG is different. In sharing my experience, I am in no way saying this is how it is for everyone, I just wanted to raise awareness of how it can be.
           
            My HG has calmed down a lot since early pregnancy. I woke up this morning and realized, “Hey I don’t feel like I’m about to puke right now!” This was a big moment for me. It is amazing to wake it the morning and feel normal. Now that I only puke a couple times every other day or so, I can appreciate the humor in just how ridiculously sick I was in the beginning. I sat down the other day and decided to write a list of things that used to (or still do!) make me throw up because it still kind of blows my mind. Here it is:

·      Lying on my back
·      Waking up in the morning
·      Drinking water
·      Rolling over in bed
·      Bending over- like to put on my shoes or pick something up off the floor
·      Getting hot- I didn’t blow dry my hair for months because of this and I lived glued to our small box fan over the summer- I literally toted it around the house with me
·      Smelling or eating green onions (weirdly the only food I have ever really reacted to)
·      Going more than 2 hours without eating
·      Sitting for too long- think more than like 40 minutes at a time
·      Walking briskly
·      Showering
·      Riding in the car
·      Brushing my teeth
·      Putting on chapstick

Some of these things are still hard for me but thankfully most of them are no longer instant puke producers. I look at this and wonder how I made it through my full-time clinical rotations, and especially seeing patients starting at 6 am! I know it was not by my own strength. I have never been so aware of my own weakness, nor have I ever prayed so earnestly, “Please, please just help me get through this day.” And somehow, He did. I felt the strength of my family and my sweet husband’s prayers supporting me. I had moments where I knew I just had to take a break, sit down and try to eat something or I was going to lose it, but I had patients scheduled back to back with no breaks in sight.  And then suddenly my next patient would call and say they were running late or they wouldn’t be able to make it in and I would get my break.  I remember kneeling on my memory foam bath mat (basically my best friend for the past 7 months) after throwing up for probably the 4th or 5th time that day and just feeling so overwhelmed and tired and just done with it. And I looked up and the light was catching the beveled edge of our bathroom mirror just right to make a little rainbow for me. And it was so pretty and it was like this little message to me, “This won’t last forever, hang in there.” I know that it is only by the mercy of God that I made it through. I also could not have done it without my sweet husband. He was the best support in the world and never complained about having to pick up the slack in taking care of things because I had no energy to do things like vacuum or make dinner or do laundry. He took the best care of me. And I am so grateful for my understanding clinical instructors who had no problem stepping in for me when I felt like I was going to pass out or had to run off suddenly and who responded to texts that it was a bad morning and I would be late with “No worries, just get here when you can.” They made it possible for me to finish so I didn’t have to push back my graduation. I am immeasurably grateful to them and everyone else who has supported and prayed for me over the past 7 months.

            For those of you who know someone with HG and are wondering how to support them, here’s my experience of what’s helpful and what isn’t. It won’t be the same as anyone else’s I’m sure, because everyone is different but it’s just my two cents.

Comments that aren’t so helpful:
·      “Hey have you tried…” – the answer is yes. Trust me when I say that someone who literally cannot stop puking has tried everything under the sun to stop. Ginger? Did nothing for me. Mint? Made things worse! Eating a cracker before you get out of bed? Useless when you are throwing up as soon as you roll over. I know you have good intentions and just don’t want your friend/sister/whoever to suffer needlessly, but HG often doesn’t respond to those home remedies and it can get frustrating if people imply that you wouldn’t be sick if you would just try x, y or z.
·      “How many weeks along are you? Shouldn’t you be done puking by now?” – HG doesn’t magically go away after 12, 13, 14 weeks. And trust me, I definitely have moments when I am just so annoyed and think “this is ridiculous! I am 7 months pregnant. I should not be puking anymore!”

Things that are helpful:
·      Still inviting me to do things, as long as they not physically strenuous
·      Listening
·      Being willing to roll with the punches- don’t act surprised or make a big deal out of it when I may have to excuse myself suddenly
·      Checking in on me and asking how I’m doing
·      Basically just keep me in your prayers and let me know I am in your thoughts


Like I said, everyone’s experience with HG is different and many have it much worse than I ever did. But I am so grateful for the love and support that I have received and I wanted to say thank you to all who have been there for me. And if you think you may have HG or know someone who does please check out this website: http://www.helpher.org.  It has support, ideas, and great information. And don’t be afraid to advocate for yourself. Zofran has literally saved my life the last 7 months when other medications did literally nothing for me. However, some healthcare providers can be reluctant to prescribe it. If your meds aren’t working for you, you need to let your healthcare provider know. You aren’t just weak and it’s not in your head. If your healthcare provider gives you a hard time, find a new one! And hang in there, it really won’t last forever.